HAVE A HEART
You are invited to
The Northern Illinois NMF Chapter’s 17th Annual Marfan Syndrome Walk-a-thon.
Join us for our Have a Heart Walk-a-thon, Bike or Rollarblade event.
DAY: Sunday June 6th, 2010
TIME: 11:00am Registration Walk begins at 11:30am till ???
LOCATION: TY WARNER PARK in Westmont IL
(see mapsonus.com for directions)
This is a Memorial Walk in memory of those who have passed. Their names will be posted. If you wish to add a name please call or email us.
Please mark your calendars for this great event!!!
All funds raised will be donated to Pediatric Awareness and Education and Support.
Paramount Tall Club of Chicago will host the outing and Marfan raffle. The picnic will be paid for by the Northern Illinois Chapter.
Please let us know if you are able to attend so we order enough food and drink for everyone. R.S.V.P us at our voice mail number 630-415-0044 or e-mail us at: bklein01@sbcglobal.net
T-shirts for all who participate with a minimum donation of $25.00 or more. There will be door prizes and a raffle after registration.
If you are unable to attend, but would still like to make a donation for this important cause, simply print the form below, fill it in, and mail with your check to:
Bruce Klein
President Northern Illinois Marfan Chapter
1328 Court O
Hanover Park, IL 60133-5511
Pledge Sheet
Name_________________________________
Address_______________________________City,State_____
$Amount_____________
Fed. Tax I.D. 501c #52-1265361
We thank you for your support.
Bruce
Please consider any size contribution. This is truly a good cause. There are no salaried CEOs or staff dipping their fingers into the funds. ALL the money is used for Pediatric Awareness and Education and Support.
I'll be back next week. Until then...
Happy Writing!
Sloane Taylor
Sweet as Honey...Hotter than Hell
www.sloanetaylor.com
Showing posts with label Marfan syndrome. Show all posts
Showing posts with label Marfan syndrome. Show all posts
Thursday, May 27, 2010
Friday, September 18, 2009
DRINK FOR A CURE
Sounds like an odd, but fun way to combat a little known disease that strikes thousands of people worldwide.
September 19, 2009
8:00pm to Midnight
Molly Malone’s Irish Pub
7652 Madison Street
Forest Park, IL
The donation for this event is $50.00 per person and includes all your drinks and food.
Drink for a Cure began in 1998 when Christian Banke was diagnosed with Marfan syndrome. Christian died in 2002 while undergoing surgery. He was the second person stricken in the Banke family. They soon learned most people, including doctors, had not heard of Marfan syndrome. Millions of people across all geographical and racial groups can have Marfan syndrome. To make the world more aware and raise money for this under-funded disease, the Banke and Yario families hold a yearly fundraiser that raises awareness for this silent killer by donate the funds to the National Marfan Foundation.
Here’s a little background on the disease.
Marfan syndrome is a disorder of connective tissue. Connective tissue holds all parts of the body together and helps control how our bodies grow. Because connective tissue is found throughout out bodies, Marfan syndrome can occur in many different parts of us. The features are most often found in the heart, blood vessels, bones, joints, and eyes. The lungs and skin may also be affected. Marfan syndrome does not affect intelligence.
How does someone contract Marfan syndrome, you might ask?
Each child of a Marfan victim has a 50 percent chance to inherit the disorder. Sometimes a spontaneous mutation occurs during the formation of sperm or egg cells, resulting in a baby with Marfan syndrome. Two unaffected parents have only a 1 in 10,000 chance of having a child with Marfan syndrome. Approximately 25% of cases are due to a spontaneous mutation at the time of conception.
Your donations do help.
Pediatric Awareness and Educational Programs are in place to make the medical community, all health professional, the media and the public conscious of this disease for early detection. Your contribution, not matter what size, is greatly appreciated. The National Marfan Foundation is a 501 © (3) charitable organization therefore all donations are tax deductable. Their Tax ID Number is 52-1265361. To learn more, please go to www.marfan.org or call 1-800-862-7326.
I hope you can join us Sept. 19. You’ll have a great time while helping with an excellent cause.
Sloane Taylor
Sweet as Honey…Hotter than Hell
www.sloanetaylor.com
Sounds like an odd, but fun way to combat a little known disease that strikes thousands of people worldwide.
September 19, 2009
8:00pm to Midnight
Molly Malone’s Irish Pub
7652 Madison Street
Forest Park, IL
The donation for this event is $50.00 per person and includes all your drinks and food.
Drink for a Cure began in 1998 when Christian Banke was diagnosed with Marfan syndrome. Christian died in 2002 while undergoing surgery. He was the second person stricken in the Banke family. They soon learned most people, including doctors, had not heard of Marfan syndrome. Millions of people across all geographical and racial groups can have Marfan syndrome. To make the world more aware and raise money for this under-funded disease, the Banke and Yario families hold a yearly fundraiser that raises awareness for this silent killer by donate the funds to the National Marfan Foundation.
Here’s a little background on the disease.
Marfan syndrome is a disorder of connective tissue. Connective tissue holds all parts of the body together and helps control how our bodies grow. Because connective tissue is found throughout out bodies, Marfan syndrome can occur in many different parts of us. The features are most often found in the heart, blood vessels, bones, joints, and eyes. The lungs and skin may also be affected. Marfan syndrome does not affect intelligence.
How does someone contract Marfan syndrome, you might ask?
Each child of a Marfan victim has a 50 percent chance to inherit the disorder. Sometimes a spontaneous mutation occurs during the formation of sperm or egg cells, resulting in a baby with Marfan syndrome. Two unaffected parents have only a 1 in 10,000 chance of having a child with Marfan syndrome. Approximately 25% of cases are due to a spontaneous mutation at the time of conception.
Your donations do help.
Pediatric Awareness and Educational Programs are in place to make the medical community, all health professional, the media and the public conscious of this disease for early detection. Your contribution, not matter what size, is greatly appreciated. The National Marfan Foundation is a 501 © (3) charitable organization therefore all donations are tax deductable. Their Tax ID Number is 52-1265361. To learn more, please go to www.marfan.org or call 1-800-862-7326.
I hope you can join us Sept. 19. You’ll have a great time while helping with an excellent cause.
Sloane Taylor
Sweet as Honey…Hotter than Hell
www.sloanetaylor.com
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